At the Urodynamics Suite of the hospital yesterday, I met a Malay lady who was accompanying her grand daughter to do the Urodynamics test. Her grand-daughter was to do the test right after Cass. We chit-chatted and exchanged stories on why my daughter and her grand-daughter needed to do the test.
I guess her grand-daughter, S is in a much more pitiful situation. S was born at only 26 weeks old (6.5 months) but her other twin sibling did not make it. The doctor did tell the family that the baby will have a host of health problems. At 6YO, S had one of her kidneys removed (nephrectomy). With just 1 kidney now, I can see that S' grand-mother is very protective of her. The loving grand-mother used to wait in school for S to change her diapers, right until she was in Primary 2. S is now in Primary 3 and still wears diapers to school and she knows how to change diapers herself. This lady would accompany S to all her appointments in the hospital. What an awesome grand-mother she is and S is so blessed to have her as her grand-mother.
S hangs a tumbler holder over her shoulder, which holds a very huge tumbler of water. Her grand-mother told me that S has to drink water like a fish every 1 hour and has to pee and drain her urine out every 4 hours.
In school, S' parents have written a letter to the school principal to exempt S from doing any form of sports. Reason is that with only 1 kidney, they do not want any accident to happen to her, which could rob the other kidney away :(
At home, S can pee on her own but after peeing, she has to insert a small catheter into her urethra to drain out excess pee from her bladder. Initially, the old lady would help S drain out the urine. Now that S is 9YO, she knows how to do it herself all the time. S told me "dah tak sakit lar" (not painful anymore). S is another tough and brave girl, just like Cass!
However, S still has dirty urine (which is not a good sign) and is on daily meds. She is scheduled to undergo a surgery to 'enlarge the bladder' - that was what her father told me. I really sympathize with S and her family members. S is such a bubbly and pretty girl (albeit very chubby from lack of exercise).
This was Cass during the Urodynamics test yesterday. She was fully conscious throughout the 40-minutes procedure. Not a tear was shed. Not a scream was let out. I held on tight to her hands and hugged her most of the time, except for leaving her side for a few minutes to steal a few snapshots of her :D
Doesn't Cass deserve a 'Bravery' award for little girls? I think she so deserves one for her bravery and composure in handling painful situations. She was as cool as a cucumber yesterday and I was shivering in the freezer room, though I had a 'heavy armor coat' on for protection against radiation from the X-Ray.