RMCO Day 17 ~ Friday, 26 June 2020

Cass did an MRU on 18 May 2020 at Hospital Wanita dan Kanak-kanak Kuala Lumpur (CRC Women & Children Hospital) and till today, the nurse from the Nephrology unit at HKL still hasn't received the report from the Radiology Unit @ HWKKKL. I've called the nurse twice and every time she gave me the same answer.  It's my hope that IF a surgery is required, it can be done by this year before Cass goes to high school next year. However, looking at how slow things are moving at the hospital, it would be another one month or longer before we get an appointment to see the Nephrologist for her to explain the MRU findings and next step forward to us.

If nothing significant is seen from the MRU images, Cass may have to either get another repeat MRU or a CT Scan done. I am not keen on a CT Scan as it emits radiation but I would have no choice but to agree to it if all other options are exhausted. These are the challenges that we face from a government hospital as hundreds and thousands of patients are on the waiting list to see doctors, get diagnostic tests done and another long wait if surgery is required.  Some friends have suggested for us to go to a private hospital but the cost is too intimidating and not an option at the moment.  The entire cost from the diagnostic tests to the surgery to post surgery would run up to RM100,000!  We spent an accumulative amount of approximately RM70k - 80k on Cass' surgeries, pre-surgeries and post-surgeries done at private hospitals when she was a baby and sadly, not a single sen was claimable as her condition is congenital and not covered by insurance 😥😪

I guess I'll have to up my waiting game by calling the nurse every other day to put a little pressure on her to give Cass' case a priority. If I were to wait for her to call me, she may lose Cass' file again!  It was a nightmare for me when she told me last year that she lost Cass' medical file with all the reports on all the diagnostic tests that she did at HKL over the past 6 years 😵😱  Thank God she found it later.

Now on food! 😋

As it's the Dragon Boat Festival or Zhongzi Festival yesterday, we've got a stash of yummy zhong in our fridge, thus we've been feasting on rice dumplings since early this week.




Sherilyn cooked these delish meat-free dishes for lunch on Monday:

Gyeran Mari (Rolled Omelette), Korean seasoned spinach using organic baby spinach and stir-fried lady's fingers and aubergine with onions, garlic, red chilies and oyster sauce.



For dinner tonight, we had Nasi Briyani and Nasi Minyak from hubby's kitchen again.  Tomorrow we'll have to settle with some non-spicy food to give our stomachs a respite from hot and spicy food. We've been having rich and delectable spicy food from hubby's shop almost everyday for the past 2 months.  Porridge would be really comforting for us but our 'tai siew cheh' / big princess sulks at the sight of porridge.  Thankfully she's not spoilt rotten and will be happy to grab a cup of yoghurt from the fridge or fix a strawberry jam toast for herself while the rest of us eats porridge 😁 .